02 March 2009 ~ View Comments

Baby Jonah Update

The story of baby Jonah continues to spread. Over the weekend Matt and Patrice have had nearly 30,000 visitors to their blog. Hundreds of other blogs are sharing their story and spreading the word. A flood of comments continue to fill their blog every day with prayers, words of encouragement, medical advice and even other children of all ages who have suffered from this disease and are still living normal daily lives now. Their Facebook Group continues to gain new members of support and is currently over 1000 members strong. Tens of thousands across the country have joined with their churches in support through prayer groups for baby Jonah.

Saturday Matt and Patrice were notified that Jonah in fact does have the disease epidermolysis bullosa. It is such a rare disease that only 8 in 1 million children are diagnosed with it. It is caused by a dormant gene carried by both parents. There are three variants of the disease from the least severe to the most severe. It will be a couple weeks until the biopsy results conclude which type Jonah has.

Continue following Matt and Patrice’s updates on Jonah at: http://www.patriceandmattwilliams.blogspot.com/

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